Support Us

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Is it nearly your birthday? Why not celebrate another trip around the sun by raising funds for Usher Syndrome Ireland. While Meta (Facebook and Instagram) no longer support fundraising platforms for EU charities, you can still make a difference by setting up a birthday fundraiser on iDonate and share the link on your socials. 

 Looking for a fun and meaningful way to support Usher Syndrome Ireland? Why not host your own event! You could organise a coffee morning or bake sale, take on a readathon, or even challenge yourself to a Netflix binge for charity. Feeling active? How about committing to 5,000 steps every day for a month? Or maybe declutter your wardrobe and sell unused clothes on apps like Depop.

The possibilities are endless, and every small effort can make a big difference!

If you have your own idea or need some inspiration, we’d love to hear from you. Reach out to us at contact@usherireland.org, and we’ll be happy to support you in making your event a success!

Mark your calendars! The VHI Women’s Mini Marathon is taking place on Sunday, 1st June 2025. Tickets go on general sale in March, but be sure to keep an eye out for special offers before then!

In 2024, we had six amazing participants representing Usher Syndrome Ireland - can we beat that in 2025? We’d absolutely love to! Whether you walk, jog, or run, your efforts will help raise vital funds and awareness for our mission.

Stay tuned for more details here, and let’s make this year’s event even bigger and better together!

From Dublin’s bustling streets to the stunning shores of Galway Bay, Ireland is home to incredible running events. Lace up, take part, and make every step count for Usher Syndrome Ireland!

• Great Limerick Run – 4th May
• Cork City Marathon – 1st June
• Irish Life Dublin Marathon – 26th October
• Galway Bay Run – 4th October

To find a list of other fun runs, races, and marathons taking place near you, check out the Running Calendar Ireland website.

  Do you have a skill that could help Usher Syndrome Ireland? Whether it’s photography, video-making, accountancy, social media management, or anything else, we’d love to hear from you! Your expertise can make a huge difference in supporting our mission and amplifying the work we do for individuals and families living with Usher syndrome.

No matter how much time or effort you can offer, every contribution counts and helps move us closer to our goal. Whether it's lending a hand for a one-off project or offering ongoing support, your skills are invaluable to us.

If you'd like to donate your skills, please email us at: contact@usherireland.org

Your story can make a powerful impact! 

Share how you or someone you know is connected to or affected by Usher syndrome and help raise awareness about this rare condition. By telling your story, you can inspire others to support Usher Syndrome Ireland and join the cause. When many voices come together, we can create a bigger impact and reach even more people.

If you're comfortable, we'd love to hear your story and share it with our community. Contact us, and we’d be happy to feature it on our website or through our socials. Sharing your story through social media or even public outlets like newspapers can help spread awareness even further. Don’t forget to tag us, and we’ll happily share it too!

Every story matters, and your voice can really help make a difference!

Your generous support will help make a real difference.

By donating, you’re supporting Usher Syndrome Ireland’s mission to advocate for those affected by Usher syndrome, provide essential support to families, and fund vital research toward finding a cure.

As a volunteer-run charity, 100% of your donation goes directly towards our work, helping us raise awareness, support individuals, and keep our efforts moving forward.