Usher Syndrome Ireland
Usher Syndrome Ireland
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    • What is Usher Syndrome?
    • Usher Syndrome - Genetics
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    • Telling Your Child
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  • More
    • HOME
    • DONATE
    • INFORMATION
      • What is Usher Syndrome?
      • Usher Syndrome - Genetics
      • Adults - Newly Diagnosed?
      • Adults - USH Community
      • Newly Diagnosed Child?
      • Telling Your Child
      • Parents - USH Community
      • USH Connect
    • HCPs
      • Information for HCPs
      • Overview - Usher Syndrome
      • Create Accessibility
      • Talks/Presentations
    • USH IN RESEARCH
      • USH Research News
      • Usher Syndrome Research
      • Understanding USHResearch
      • USH Research & Trials
      • USH Patient Registries
    • MORE INFO & RESOURCES
      • Are You Usher Aware?
      • Life with USH - Blog
      • Usher Syndrome Leaflets
      • Further Resources
      • Yellow Sticker Campaign
      • Archived Newsletters
    • ABOUT US
      • About Us
      • Meet Our Team
      • Contact Us
    • SUPPORT US
      • DONATE
      • Support Us
    • CRUSH TY Project
  • HOME
  • DONATE
  • INFORMATION
    • What is Usher Syndrome?
    • Usher Syndrome - Genetics
    • Adults - Newly Diagnosed?
    • Adults - USH Community
    • Newly Diagnosed Child?
    • Telling Your Child
    • Parents - USH Community
    • USH Connect
  • HCPs
    • Information for HCPs
    • Overview - Usher Syndrome
    • Create Accessibility
    • Talks/Presentations
  • USH IN RESEARCH
    • USH Research News
    • Usher Syndrome Research
    • Understanding USHResearch
    • USH Research & Trials
    • USH Patient Registries
  • MORE INFO & RESOURCES
    • Are You Usher Aware?
    • Life with USH - Blog
    • Usher Syndrome Leaflets
    • Further Resources
    • Yellow Sticker Campaign
    • Archived Newsletters
  • ABOUT US
    • About Us
    • Meet Our Team
    • Contact Us
  • SUPPORT US
    • DONATE
    • Support Us
  • CRUSH TY Project

Adults - Newly Diagnosed?

You are not alone

If you have been recently diagnosed with Usher syndrome, be assured that it is perfectly normal to feel a wide range of emotions including devastation and grief. There are many of us who have been here, and we know what a difficult time this can be. Everyone handles their diagnosis differently, and it is ok to feel what it is you may be feeling. It is also ok to need to take some time to work through these feelings. However, If you feel your diagnosis is becoming too much to cope with, then we highly recommend talking with a registered therapist who can hep you to work through your feelings. Please reach out to your GP who will be able make some recommendations. 


Many find, equipping themselves with knowledge and learning more about Usher syndrome helps them to feel more in control. Below, you will find many different sections providing information on certain topics including, more details about this condition, the genetics involved, Usher syndrome research, and more. 


We also have a page dedicated to where you can find other adults in the USH community who are also on this journey, so you never have to feel you are going through this alone. You will find in time, the USH community is a wonderfully diverse and amazing community.

A man with short hair and a beard thinking.
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What is Usher Syndrome?

Learn about Usher syndrome

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USH Genetics

Discover USH genes, inheritance & genetic testing

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USH Research

Learn about different research and latest news

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Adults - USH Community

Find support for adults in the USH community

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Downloadable Leaflets & Info

Information & leaflets you can download


 Call/Text

+353 (89) 262 4696  (Mon-Fri 10am-4pm)


Registered Address

15 Windsor Terrace, Dun Laoghaire, Co. Dublin,  A96 RF29


Registered Charity Number: 20206288 - CHY Number: 23000 -  CRO Number: 688621 

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