Are You Usher Aware?
Learn About USH in a New Awareness Campaign for HCPs
Usher Syndrome is a rare genetic condition that affects both hearing and vision, and it is the most common genetic cause of combined sight and hearing loss. Despite this, it remains under-recognised in healthcare settings. To bridge this awareness gap, we are excited to introduce the USH Awareness Pack for Healthcare Professionals (HCPs)—a vital resource for healthcare providers.
Our goal is to equip healthcare professionals with the knowledge and resources needed to confidently provide information and support in an accessible manner, tailored to meet the diverse needs of those affected. By enhancing clinical management and improving patient experiences, we hope these packs will foster a more informed and compassionate approach to care.
What's Inside the Pack?
Each Awareness Pack includes:
- Educational materials on Usher Syndrome and its impact.
- Guidance on early identification and referral pathways.
- Resources for patient communication and support.
- Tools to raise awareness in your clinic and community.
Why Is This Important?
By increasing awareness and understanding of Usher Syndrome, healthcare professionals can play a crucial role in improved patient care, and support for those living with this rare condition.
Request a Pack for Your Clinic
Do you work in healthcare and want your clinic to benefit from one of our Awareness Packs?
Request yours today by providing the following details:
- Your Name
- Clinic Name
- Address
- Contact Information
Simply email this information to contact@usherireland.org, and we’ll make sure your clinic receives one of our Usher Syndrome Awareness Packs.
This awareness initiative is supported by the #RAREis grant, a grant program by Amgen.
