Information for Healthcare Professionals
Learn about Usher syndrome and how to best support patients with this rare condition
As healthcare professionals (HCPs) regularly engage with patients with Usher syndrome, it is crucial that patient engagement includes best practice in supporting a patient who is living with this rare, progressive dual-sensory loss condition.
Some ways to help best support patients with Usher syndrome includes:
- Learn more about the condition
- Understanding the different impacts it may have on a patient with USH, and how they can vary from patient to patient with USH
- Understand the different accessibility needs of a patient with USH which can vary widely
- Highlight to USH patients of supportive patient organisations such as ours, where they can get support and information, and a place to connect with others.
Below you will find some sections which will be helpful, as well as various information throughout our website.
We also have provided downloadable PDFs which you may find useful to print and distribute among your HCP peers, and to any patient that has Usher syndrome. The leaflet provide a comprehensive overview of Usher syndrome, and the brochures provides brief information for patients, and for HCPs.
If you have any further queries, please don't hesitate to contact us.
