Usher Syndrome Ireland
Usher Syndrome Ireland
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    • What is Usher Syndrome?
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  • More
    • HOME
    • DONATE
    • INFORMATION
      • What is Usher Syndrome?
      • Usher Syndrome - Genetics
      • Adults - Newly Diagnosed?
      • Adults - USH Community
      • Newly Diagnosed Child?
      • Telling Your Child
      • Parents - USH Community
      • USH Connect
    • HCPs
      • Information for HCPs
      • Overview - Usher Syndrome
      • Create Accessibility
      • Talks/Presentations
    • USH IN RESEARCH
      • USH Research News
      • Usher Syndrome Research
      • Understanding USHResearch
      • USH Research & Trials
      • USH Patient Registries
    • MORE INFO & RESOURCES
      • Are You Usher Aware?
      • Life with USH - Blog
      • Usher Syndrome Leaflets
      • Further Resources
      • Yellow Sticker Campaign
      • Archived Newsletters
    • ABOUT US
      • About Us
      • Meet Our Team
      • Contact Us
    • SUPPORT US
      • DONATE
      • Support Us
    • CRUSH TY Project
  • HOME
  • DONATE
  • INFORMATION
    • What is Usher Syndrome?
    • Usher Syndrome - Genetics
    • Adults - Newly Diagnosed?
    • Adults - USH Community
    • Newly Diagnosed Child?
    • Telling Your Child
    • Parents - USH Community
    • USH Connect
  • HCPs
    • Information for HCPs
    • Overview - Usher Syndrome
    • Create Accessibility
    • Talks/Presentations
  • USH IN RESEARCH
    • USH Research News
    • Usher Syndrome Research
    • Understanding USHResearch
    • USH Research & Trials
    • USH Patient Registries
  • MORE INFO & RESOURCES
    • Are You Usher Aware?
    • Life with USH - Blog
    • Usher Syndrome Leaflets
    • Further Resources
    • Yellow Sticker Campaign
    • Archived Newsletters
  • ABOUT US
    • About Us
    • Meet Our Team
    • Contact Us
  • SUPPORT US
    • DONATE
    • Support Us
  • CRUSH TY Project

Information for Healthcare Professionals

Learn about Usher syndrome and how to best support patients with this rare condition

As healthcare professionals (HCPs) regularly engage with patients with Usher syndrome, it is crucial that patient engagement includes best practice in supporting a patient who is living with this rare, progressive dual-sensory loss condition. 


Some ways to help best support patients with Usher syndrome includes:


  • Learn more about the condition
  • Understanding the different impacts it may have on a patient with USH, and how they can vary from patient to patient with USH
  • Understand the different accessibility needs of a patient with USH which can vary widely
  • Highlight to USH patients of supportive patient organisations such as ours, where they can get support and information, and a place to connect with others.  


Below you will find some sections which will be helpful, as well as various information throughout our website. 


We also have provided downloadable PDFs which you may find useful to print and distribute among your HCP peers, and to any patient that has Usher syndrome. The leaflet provide a comprehensive overview of Usher syndrome, and the brochures  provides brief information for patients, and for HCPs. 


If you have any further queries, please don't hesitate to contact us. 



***NEW***

We have created new USH Awareness Packs specifically for healthcare professionals. To learn more about these packs and how you can order yours today, please go to  our page Are You Usher Aware?

A HCP is sitting in a chair.
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Overview of Usher Syndrome

Learn more about Usher syndrome

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Creating Accessibility

Create an accessible environment for USH patients

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Talks/ Presentations

Providing presentations to you and your HCP peers

Leaflets for HCPs and Patients

Informational leaflets for healthcare professionals and patients.

Usher Syndrome Explained - Leaflet (pdf)

Download

Leaflet for Healthcare Professionals (pdf)

Download

Usher Syndrome - Patient Leaflet (pdf)

Download

 Call/Text

+353 (89) 262 4696  (Mon-Fri 10am-4pm)


Registered Address

15 Windsor Terrace, Dun Laoghaire, Co. Dublin,  A96 RF29


Registered Charity Number: 20206288 - CHY Number: 23000 -  CRO Number: 688621 

Copyright © 2021 - 2025 Usher Syndrome Ireland

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