As healthcare professionals (HCPs) regularly engage with patients with Usher syndrome, it is crucial that patient engagement includes best practice in supporting a patient who is living with this rare, progressive dual-sensory loss condition.
Some ways to help best support patients with Usher syndrome includes:
Below you will find some sections which will be helpful, as well as various information throughout our website.
We also have provided downloadable PDFs which you may find useful to print and distribute among your HCP peers, and to any patient that has Usher syndrome. The leaflet provide a comprehensive overview of Usher syndrome, and the brochures provides brief information for patients, and for HCPs.
If you have any further queries, please don't hesitate to contact us.
+353 (89) 262 4696
15 Windsor Terrace,
Dun Laoghaire, Co. Dublin,
Reg. Number: 688621
Reg Charity Number: 20206288
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