Usher Syndrome Ireland
Usher Syndrome Ireland
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  • More
    • HOME
    • DONATE
    • INFORMATION
      • What is Usher Syndrome?
      • Usher Syndrome - Genetics
      • Adults - Newly Diagnosed?
      • Adults - USH Community
      • Newly Diagnosed Child?
      • Telling Your Child
      • Parents - USH Community
      • USH Connect
    • HCPs
      • Information for HCPs
      • Overview - Usher Syndrome
      • Create Accessibility
      • Talks/Presentations
    • USH IN RESEARCH
      • USH Research News
      • Usher Syndrome Research
      • Understanding USHResearch
      • USH Research & Trials
      • USH Patient Registries
    • MORE INFO & RESOURCES
      • Are You Usher Aware?
      • Life with USH - Blog
      • Usher Syndrome Leaflets
      • Further Resources
      • Yellow Sticker Campaign
      • Archived Newsletters
    • ABOUT US
      • About Us
      • Meet Our Team
      • Contact Us
    • SUPPORT US
      • DONATE
      • Support Us
    • CRUSH TY Project
    • USH2025-Poster
  • HOME
  • DONATE
  • INFORMATION
    • What is Usher Syndrome?
    • Usher Syndrome - Genetics
    • Adults - Newly Diagnosed?
    • Adults - USH Community
    • Newly Diagnosed Child?
    • Telling Your Child
    • Parents - USH Community
    • USH Connect
  • HCPs
    • Information for HCPs
    • Overview - Usher Syndrome
    • Create Accessibility
    • Talks/Presentations
  • USH IN RESEARCH
    • USH Research News
    • Usher Syndrome Research
    • Understanding USHResearch
    • USH Research & Trials
    • USH Patient Registries
  • MORE INFO & RESOURCES
    • Are You Usher Aware?
    • Life with USH - Blog
    • Usher Syndrome Leaflets
    • Further Resources
    • Yellow Sticker Campaign
    • Archived Newsletters
  • ABOUT US
    • About Us
    • Meet Our Team
    • Contact Us
  • SUPPORT US
    • DONATE
    • Support Us
  • CRUSH TY Project
  • USH2025-Poster

Support Surveys

Help shape our support programs

The wellbeing of our everyone in the USH community is very important to us. Therefore, over the next few months and throughout 2023, we hope to begin a series of wellbeing workshops and webinars for those affected by Usher syndrome in collaboration with Mental Health Ireland and others. But first, we need your help.

To better tailor these events to suit everyone’s need, we need you to complete a short surrey. There are two surveys, which are completely anonymous and contains no questions that could identify you or any persons known to you.

Please select the survey that better reflects how Usher syndrome impacts you:

 📌 Usher Syndrome Ireland Support Survey for Adults with Usher syndrome: https://forms.gle/HXHG8E21tQ6zJCkj9

 📌 Usher Syndrome Ireland Support Survey for Parents, Partners, Family Members, and Others of people living with Usher syndrome: https://forms.gle/5bstVFjYBcY7ssPu5

**Please note: You do NOT need to sign into Google on the first page and the form can be completed without signing in. If you are having any issues completing any of the parts of the form please email us at contact@usherireland.org 

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 Call/Text

+353 (89) 262 4696  (Mon-Fri 10am-4pm)


Registered Address

15 Windsor Terrace, Dun Laoghaire, Co. Dublin,  A96 RF29


Registered Charity Number: 20206288 - CHY Number: 23000 -  CRO Number: 688621 

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