Usher Syndrome Awareness Day is 18th Sept 2021
Usher Syndrome Ireland is a non-profit, volunteer organisation that was set up to meet the needs of Usher syndrome patients and their families in Ireland. We are currently awaiting charitable status which will allow us to begin fundraising to enable us carry out our mission.
In the meantime, we will be continuously updating this website with more contents over the coming months as we prepare for our official launch. You can stay up to date by following any of our social media accounts or by subscribing below to receive updates.
We are an organisation that aims to increase awareness and understanding of Usher syndrome, be a trusted source of information, along with the objectives of stimulating a much needed drive for scientific research for a cure or treatment for Usher syndrome. You can read our mission statement here.
Our team is made up of dedicated and incredibly passionate members who work in a voluntary capacity meaning that no team member is paid for their time or work. Read more about each of our team member and why they became involved with Usher Syndrome Ireland.
Over the next few months and years, we will be working hard to grow Usher Syndrome Ireland and as it becomes bigger we may need volunteers from time-to-time to help us. If you are interested in becoming a volunteer for us, please click the button below.
Usher syndrome is a rare, genetically inherited, disease that causes hearing and progressive sight loss. Click to read more here to understand how Usher syndrome affects the eyes, ears, balance, and more.
We'd love to hear from you! Send us a message and we will get back to you soon.
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