Usher Syndrome Ireland
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    • Home
    • Information
      • What is Usher Syndrome?
      • Usher Syndrome - Genetics
      • Adults - Newly Diagnosed?
      • Adults - USH Community
      • Newly Diagnosed Child?
      • Telling Your Child
      • Parents - USH Community
      • USH Connect
    • HCPs
      • Information for HCPs
      • Overview - Usher Syndrome
      • Create Accessibility
      • Talks/Presentations
    • Research
      • Usher Syndrome Research
      • Understanding USHResearch
      • USH Patient Registries
      • USH Research News
    • More Info & Resources
      • Usher Syndrome Leaflets
      • Yellow Sticker Campaign
      • Life with USH - Blog
      • Help & Resources
      • Archived Newsletters
    • About Us
      • About Us
      • Meet Our Team
      • Contact Us
    • Support Us
      • Support Us
      • Donate Today
    • Q&A with Jeremy
  • Home
  • Information
    • What is Usher Syndrome?
    • Usher Syndrome - Genetics
    • Adults - Newly Diagnosed?
    • Adults - USH Community
    • Newly Diagnosed Child?
    • Telling Your Child
    • Parents - USH Community
    • USH Connect
  • HCPs
    • Information for HCPs
    • Overview - Usher Syndrome
    • Create Accessibility
    • Talks/Presentations
  • Research
    • Usher Syndrome Research
    • Understanding USHResearch
    • USH Patient Registries
    • USH Research News
  • More Info & Resources
    • Usher Syndrome Leaflets
    • Yellow Sticker Campaign
    • Life with USH - Blog
    • Help & Resources
    • Archived Newsletters
  • About Us
    • About Us
    • Meet Our Team
    • Contact Us
  • Support Us
    • Support Us
    • Donate Today
  • Q&A with Jeremy

Eye on the Research

Other

A list of other studies currently underway that may benefit patients with Usher syndrome. Please refer to the link under each trial for more information on that trial. Please be aware, all information provided are for informational purposes only, and are in no way endorsed or approved by Usher Syndrome Ireland. 


Phase 1/2 Clinical Trial


  • Nacuity Pharmaceuticals focuses on the treatment of ocular oxidative stress in the retina which they believe may potentially slow down the degeneration of the photoreceptors cells as experienced by patients with RP. Their trial, SLO-RP, is currently enrolling patients in Australia with Usher syndrome in stage 1/2 to test the safety and efficacy of NP1-001 tablets over 24 months. More information can be found here: https://www.nacuity.com/pipeline/ and https://clinicaltrials.gov/.


Pre-Clinical Stage 


  • Sparing Vision hopes to begin phase1/2 by end of 2021 for RP patients, independent of mutation, meaning it could potentially benefit patients with Usher syndrome. Sparing Vision’s therapy focuses on the use of RdCVF (Rod-derived cone viability factor) to express a protein in order to preserve the health and function of cone cells in the retina. More information can be found here: https://www.sparingvision.com/en/pipeline?id=62 

 << Click here to return to  'Understanding USH Research'  


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Address

15 Windsor Terrace, 

Dun Laoghaire, Co. Dublin, 

A96 RF29


Reg. Number: 688621 

Reg Charity Number: 20206288


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